What do you do when the weight of guilt feels unbearable, and your child’s pain leaves you questioning everything? In the midst of fear and vulnerability, I found unexpected lessons in love, resilience, and the power of the present moment.


What do you do when the weight of guilt feels unbearable, and your child’s pain leaves you questioning everything? In the midst of fear and vulnerability, I found unexpected lessons in love, resilience, and the power of the present moment.

In all that fills our family life with Jax's disability, there is someone of utmost importance that always stays in my vision. The Change Maker: Baxter. Baxter is Jax's younger bro, they are a year and half apart. Baxter is Neurotypical. There is so much to know about...

We have the yearly tradition of going to a local Pumpkin Patch. My kids are just about getting old enough where next year it might not be quite as alluring as it was in their earlier childhood. I wanted to embrace this one to the fullest and cherish the moment that was upon us.

It’s fall and the air vacillates between warm days and cool mornings and nights. Like many families, we have the ritual of visiting apple orchards to pick apples and pumpkin patches to get pumpkins. It ushers in the season of magic and excited fun for my kids. We’ve...

Doors open. Ding. Doors closed.Doors open. Ding. Doors closed.Doors open. Ding. Doors closed.Doors open. Ding. Doors closed. I’m pretty certain we could be here for hours and he’d be thrilled. I indulge him in the moment, even as I know some people might be staring. J...

Jax was flying fast on his ski’s down the mountain. Smiling and happy in the freedom of the movement, his aide guiding his direction. The ability to gain speed as he rushed down the steeper angle filled all his senses and was just what he loved… the input of movement....
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